Our Mission for all suffers of DBA
Our mission from setting up this Website is not only to Raise awareness of this condition its to help raise sufficient funds to support Brooke and her family through the IVF PDG process and Brookes Bone Marrow Transplant.
not only are Brooke and her Family going to have a long emotional struggle, they are also facing an enormous financial burden. The medical boards refuse to pay for the IVF PDG process and the Bone Marrow as DBA has been termed an “orphan disease”. By definition this is a disease which has not been "adopted" by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it. this is why research into the causes and potential cures for DBA is practically non-existent, leaving children like Brooke with no hope of survival and no future.
It is therefore our objective to raise public awareness & support for the few unfortunate DBA sufferers, like Brooke. _